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Emily E. Anderson, PhD, MPH
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BIOGRAPHY
Emily E. Anderson, PhD, MPH, is a professor. She teaches research ethics and responsible conduct of research to graduate and medical students as well as courses in empirical bioethics and global bioethics. Her areas of interest and expertise include researcher and physician professionalism and misconduct; ethical issues in research with vulnerable populations; informed consent; institutional review board (IRB) policy; and the application of qualitative research techniques to the study of research ethics. Dr. Anderson has published articles in the American Journal of Bioethics, Ethics and Behavior, Journal of Law Medicine and Ethics, Academic Medicine, Accountability in Research, and the Journal of Empirical Research on Human Research Ethics (JERHRE). She serves as associate editor for Narrative Inquiry in Bioethics. She also has almost 20 years of experience serving on six different IRBs and frequently presents at conferences including the American Society for Bioethics and Humanities (ASBH) and Public Responsibility in Medicine and Research (PRIM&R). Dr. Anderson has also been a co-investigator on several federally-funded research and educational projects.
Dr. Anderson is the Principal Investigator/Project Director of the Loyola University Chicago-Ukrainian Catholic University (LUC-UCU) Doctoral and Post- Doctoral Bioethics Fellowship Program. This program provides advanced training in research ethics in English to scholars and professionals from Ukraine. The aim of this program is to train a critical mass of bioethics experts who will hold positions of scholarship and leadership in health research institutions in Ukraine. These individuals will be instrumental in providing direction on matters of research ethics to their educational institutions, government agencies, and international organizations. This program is a partnership between the Neiswanger Institute and UCU’s School of Bioethics.
Courses
BEHL 405 Research Ethics
BEHL 425 Empirical Bioethics
BEHL 430 Advanced Topics in Research Ethics: Special Populations
BEHL 432 Global Bioethics
BEHL 491 Bioethics of Pandemics and Public Health Preparedness
BEHL 491 Bioethics of Film & Television
BEHL 491 Feminist Bioethics
BEHL 491 Bioethics During War
BMSC 405 Ethical Issues in Biomedical Sciences
Research Interests
Research ethics, empirical bioethics, global bioethics
PUBLICATIONS
Emily E. Anderson (2023) Balancing Protection and Inclusion by Including More Non-Scientist and Nonaffiliated Members on IRBs. AJOB 23(6): https://doi.org/10.1080/15265161.2023.2201215.
Kraft SA, Porter KM, Sullivan TR, Anderson EE, Garrison NA, Baker L, Smith JM, and Weiss EM (2022). Relationship Building in Pediatric Research Recruitment: Insights from Qualitative Interviews with Staff. Journal of Clinical and Translational Science. 6(1): e138.
Serpico K, Rahimzadeh V, Anderson EE, Gelinas L, & Fernandez Lynch H. (2022). Institutional Review Board Use of Outside Experts: What Do We Know? Ethics & Human Research, 44(2): 26-32. PMID: 35218600
Borghese M, Joyce C, Anderson EE, Churpek MM, and Afshar M. (2022). Bias Assessment and Correction in Machine Learning Algorithms: A Use-Case in a Natural Language Processing Algorithm to Identify Hospitalized Patients with Unhealthy Alcohol Use. AMIA Annual Symposium Proceedings. Feb 21: 247-254. eCollection. PMID: 35308909
Serpico K, Rahimzadeh V, Gelinas L, Hartsmith L, Fernandez Lynch H, Anderson EE. (2022). Institutional Review Board Use of Outside Experts: A National Survey. AJOB Empirical Bioethics, June 24: 1-12. PMID: 35748820
Smith E, Anderson EE, Deer R, Prochaska J, Bohn K, Croisant S. (2022). Reviewing Fair Subject Selection Considerations for the Unique Case of Post Sequelae COVID-19 Translational Studies. Journal of Clinical and Translational Science. 6(1): e91. PMID: 36003210
Basarab M, Anderson EE. (2022). Research During Wartime: Ethical Challenges Faced by Oncology Researchers in Ukraine. JAMA Oncology. 8(9): 1254-1255. PMID: 35834216
Anderson EE, Hurley EA, Serpico K, Johnson A, Rowe J, Singleton M, Bierer BE, Cholka B, Chaudhari S, Fernandez Lynch H. (2023). Engaging Key Stakeholders to Overcome Barriers to Studying the Quality of Research Ethics Oversight. Research Ethics. 19(1) 62-77.
Kraft SA, Porter KM, Sullivan TR, Anderson EE, Garrison NA, Baker L, Smith JM, and Weiss EM (2022). Relationship Building in Pediatric Research Recruitment: Insights from Qualitative Interviews with Staff. Journal of Clinical and Translational Science. 6(1): e138
Brazel, D, Witowska J, Wesolowski M, Anderson EE. (2021). Crying with a Patient: A Pilot Study of the Attitudes of Physicians and Physicians-in-Training. Narrative Inquiry in Bioethics. 11(2).
Taylor HA, Serpico K, Lynch HFL, Baumann J, & Anderson EE. (2021). A snapshot of US IRB review of COVID-19 research in the early pandemic. Journal of Clinical and Translational Science, published online 13 September 2021.
Smith E, Anderson EE. (2021). Reimagining IRB Review to Incorporate a Clear and Convincing Standard of Evidence. Accountability in Research. https://doi.org/10.1080/08989621.2021.1880902
Anderson EE, Brown B. (2021). A Call for Radical Transparency Regarding Research Payments. American Journal of Bioethics. 21(3); 45-47.
Ghobrial P, Akkina S, and Anderson EE. (2021). Risks to Relationships in Kidney Transplant Research with Living Donors and Recipients. American Journal of Bioethics. 21(4): 110-112.
Anderson EE. (2021). Sharing Research Opportunities on Personal Social Media Accounts and Fair Subject Selection. American Journal of Bioethics. 21(10): 40-42.
Spellecy R, Anderson EE. (2021). Patient and Community Engagement. In IRB Management and Function, 3rd edition. Edited by Elizabeth Bankert, Bruce Gordon, Elisa Hurley, and Sharon Shriver. Jones and Bartlett.
Anderson EE, Spellecy R. (2021). Research That Engages Community and Patient Partners. Oxford Handbook of Research Ethics. Edited by Ana S. Iltis and Douglas MacKay. Oxford.
Spellecy R, Anderson EE. (2021). Respect for Persons and Artificial Intelligence in the Age of Big Data. In Artificial Intelligence in Brain and Mental Health: Philosophical, Ethical, & Policy Issues. Edited by Fabrice Jotterand and Marcello Ienca.
Caples TL, Anderson EE. (2021). Early Termination of Cardiovascular Research Protocols. Ethical Issues in Cardiovascular Medicine. Edited by D Zientek and M Cherry. Routledge, Annals of Bioethics series. Springer.
Serpico K, Rahimzadeh V, Anderson EE, Gelinas L, & Fernandez Lynch H. (2022). Institutional Review Board Use of Outside Experts: What Do We Know? Ethics & Human Research, 44(2): 26-32.
Baric-Parker J, Anderson EE. (2020). Patient data sharing for AI: Ethical challenges, Catholic solutions. The Linacre Quarterly. 87(4) 471-481. https://doi.org/10.1177/0024363920922690
Anderson EE. (2020). Partnering with Research Staff Members to Bridge Gaps in Consent. American Journal of Bioethics. 20(5): 28-30.
Ulrich CM, Anderson EE, & Walter JK. (2020). COVID-19: Advancing Empirical Bioethics Research. AJOB
Empirical Bioethics. 11(3): 145-147.
Anderson EE. (2020). A Vision for “Ethics and Community Collaborations.” Progress in Community Health Partnerships. 14(3) 273-276. Link to “Beyond the Manuscript” podcast discussion of article.
Rak K, Matthews AK, Pena G, Choure W, Ruiz RA, Morales S, Castillo A. Soo J, and Anderson EE. (2019). Priority Populations Toolkits: Enhancing Researcher Readiness to Work with Priority Populations. Journal of Clinical and Translational Science. 4(1): 28-3.
Anderson EE. (2019). A Proposal for Fair Compensation for Research Participants. American Journal of Bioethics. 19(9): 62-64.
DuBois JM, Anderson EE, Chibnall JT, Mozersky J, Walsh HA. (2019). Serious Ethical Violations in Medicine: A Statistical and Ethical Analysis of 280 Cases in the United States from 2008-2016. American Journal of Bioethics. 19(1): 16-34.
DuBois JM, Anderson EE, Chibnall JT, Diakov L, Doukas DJ, Holmboe HS, Koenig HM, Krause JH, McMillan G, Mendelsohn M, Mozersky J, Norcross WA, Whelan AJ. (2019). Preventing Egregious Ethical Violations in Medical Practice: Evidence-Informed Recommendations from a Multidisciplinary Working Group. Journal of Medical Regulation. 104(4): 21-29.
Anderson EE, Boyd B, Qureshi NK, Stirling JM, McCarthy V, Kuczewski MG. (2018). Operation Homefront: Meeting Clerkship Competencies with Home Visits to Families of Children of Special Needs. Academic Pediatrics doi: https://doi.org/10.1016/j.acap.2018.09.002
Anderson EE, Tejeda S, Warnecke RB, and Hoskins K. (2018). Views of Low-Income Women of Color at Increased Risk for Breast Cancer. Narrative Inquiry in Bioethics. 8(1): 53-66.
Anderson EE, McNair L. (2018). Ethical Issues in Research Involving Participants with Opioid Use Disorder. Therapeutic Innovation & Regulatory Science. 52(3): 280-284.
Kuczewski MG, Anderson EE. (2018). Against Consent Form Language Requiring Multiple and/or Specific Methods of Contraception. IRB: Ethics &Human Research. 40(3): 11-13.
Matthews AK, Newman S, Anderson EE, Castillo A, Willis M, and Choure W. (2018). Development, implementation, and evaluation of a Community Engagement Advisory Board: Strategies for maximizing success. Journal of Clinical and Translational Science. 2(1): 8-13. doi:10.1017/cts.2018.13
Matthews AK, Rak K, Anderson EE, Castillo A, Ruiz R, Choure W, and Willis M. (2018). Evaluation of three approaches for increasing patient engagement in clinical research: Feedback from a community engagement advisory board. Journal of Clinical and Translational Science. 2(1): 14-19. doi:10.1017/cts.2018.12
Matthews AK, Anderson EE, Willis M, Castillo A, and Choure W. (2018). A Community Engagement Advisory Board as a Strategy to Improve Research Engagement and Build Institutional Capacity for Community Engaged Research. Journal of Clinical and Translational Science. 2(2): 66-72. doi.org/10.1017/cts.2018.14
Anderson EE, Corneli, A. (2017) 100 Questions (and Answers) About Research Ethics. Sage Publications.
Irizarry Gatell V, Nguyen T, Anderson EE, McCarthy MP, Hardt JJ. (2017) Characteristics of Medical Students Planning to Work in Medically Underserved Settings. Journal of Healthcare for the Poor and Underserved 28(4): 1409-22.
DuBois JM, Chibnall JT, Anderson EE, et al (2017) Exploring Unnecessary Invasive Procedures in the United States: A Retrospective Mixed-Methods Analysis of Cases from 2008-2016. Patient Safety in Surgery 11: 30.
Anderson EE, Newman SB, Matthews AK. (2017) Improving Informed Consent: Stakeholder Views. AJOB Empirical Bioethics, DOI: 10.1080/23294515.2017.1362488.
Anderson EE, Valadares, K (Eds). (2017) Community-Academic Partnerships in Research and Public Health. Narrative Inquiry in Bioethics 7(1): 1.
Wasson K, Kuczewski M, McCarthy M, Parsi K, Anderson EE, Hutchison P. (2017) Navigating Clinical Ethics: Using Real Case Constellations to Guide Learners and Teachers in Medicine. Southern Medical Journal 110(3): 195-99.
Solomon S, DeBruin D, Eder M, Heitman E, Kaberry JM, McCormick JB, Opp J, Sharp R, Strelnick AH, Winkler SJ, Yarborough M, Anderson EE. (2016) Community-Engaged Research Ethics Review: Exploring Flexibility in Federal Regulations. IRB: Ethics & Human Research 38(3): 11-19.
DuBois JM, Chibnall J, Anderson EE, et al. (2016) A Mixed-Method Analysis of Reports on 100 Cases of Improper Prescribing of Controlled Substances. Journal of Drug Issues,
Anderson EE. (2015) Learning from Research Participants (Open Peer Commentary). American Journal of Bioethics 15(11):14-16.
Anderson EE. (2015) CIRTification: Training in Human Research Protections for Community Research Partners. Progress in Community Health Partnerships 9(2): 283-288.
Anderson EE, Tejeda SJ, Childers K, Stolley MR, Warnecke RB, and Hoskins KF. (2015). Breast Cancer Risk Assessment with Low-Income Women of Color in Primary Care: A Pilot Study. Journal of Oncology Practice 11(4): e460-e467. (e-pub ahead of print: http://jop.ascopubs.org/content/early/recent)
Anderson EE, Kuczewski MG. (2015) The Search for a Meaningful Evaluation of Professionalism. In Assessment, Evaluation and Grading of Medical Students. Edited by William McGaghie and Louis Pangaro, Gegensatz Press.
Anderson EE, Wasson K. (2015) Personal Narratives of Genetic Testing: Expectations, Emotions, and Impact on Self and Family. Narrative Inquiry in Bioethics 5(3): 229-35.
Wasson K, Anderson EE, Hagstrom E, McCarthy M, Parsi K, Kuczewski M. (2015) What Ethical Issues Really Arise in Practice at an Academic Medical Center? A Quantitative and Qualitative Analysis of Clinical Ethics Consultations from 2008-2013. HEC Forum 27(3): DOI 10.1007/s10730-015-9293-5.
Fullerton SM, Anderson EE, Cowan K, Malen RC, and Brugge D. (2015). Awareness of federal regulatory mechanisms relevant to community engaged research: Survey of health disparities-oriented NIH-funded investigators. Journal of Empirical Research on Human Research Ethics. 10(1): 13-21.
Rush CL, Darling M, Elliott MG, Febus-Sampayo I, Kuo C, Muñoz J, Duron Y, Torres M, Campos Galván C, Gonzalez F, Caicedo L, Nápoles A, Jensen RE, Anderson EE, & Graves KD. (2015). Engaging Latina Cancer Survivors, their Caregivers, and Community Partners in a Randomized Controlled Trial: Nueva Vida Intervention. Quality of Life Research. 24(5): 1107-1118.
Anderson EE. (2014). Ethical Considerations in Collecting Health Survey Data. In Handbook of Health Survey Methods. Edited by Timothy Johnson, John Wiley & Sons, Inc.
Kuczewski MG, McCarthy MP, Michelfelder A, Anderson EE, Wasson K, Hatchett L. (2014) “I Will Never Let that be OK Again.” Student Reflections on Competent Spiritual Care for Patients. Academic Medicine. 89(1): 54-59.
Anderson EE, Solomon S. 2013.Community engagement: critical to continued public trust in research. American Journal of Bioethics. Dec;13(12):44-6.
DuBois JM, Anderson EE, Chibnall J, Carroll K, Gibb T, Ogbuka C and Rubbelke T. (2013) Understanding Research Misconduct: A Comparative Analysis of 120 Cases of Professional Wrongdoing. Accountability in Research 20 (5-6): 320-338.
DuBois JM, Anderson EE, Chibnall J. (2013) Understanding the Severity of Wrongdoing in Health Care Delivery and Research: Lessons Learned from a Historiometric Study of 100 Cases. AJOB Primary Research 4(3): 39-48.
DuBois JM, Anderson EE, Chibnall J. (2013) Assessing the Need for a Research Ethics Remediation Program. Clinical and Translational Science 6(3): 209-13.
Anderson EE. (2013) Ethical Principles for Introducing Device and/or Mesh Use into Your Practice. Clinical Obstetrics and Gynecology 56(2): 232-7.
DuBois JM, Anderson EE, Carroll K, Gibb T, Kraus E, Rubbelke T, and Vasher M. (2012) Environmental Factors Contributing to Wrongdoing in Medicine: A Criterion-Based Review of Studies and Cases. Ethics and Behavior 22(3), 163-88.
Anderson EE. (2012) Review of Marion Danis, Emily Largent, David Wendler, Sara Chandros Hull, Seema Shah, Joseph Millum, Benjamin Berkman, Christine Grady, Research Ethics Consultation: A Casebook. American Journal of Bioethics 12(10): 54-5.
Anderson EE, and Hoskins, K. (2012) Individual Breast Cancer Risk Assessment in Underserved Populations: Integrating Empirical Bioethics and Health Disparities Research. Journal of Health Care for the Poor and Underserved 23(4 suppl): 34-46.
Anderson EE, and DuBois JM. (2012) IRB Decision-Making with Imperfect Knowledge: A Framework for Evidence-Based Research Ethics Review. American Journal of Law, Medicine, and Ethics 40(4): 951-69.
Anderson EE, Solomon S, Heitman E, DuBois JM, Fisher CB, Kost RG, Lawless ME, Ramsey C, Jones B, Ammerman A, and Ross LF. (2012) Research Ethics Education for Community Engaged Research: A Review and Research Agenda. Journal of Empirical Research on Human Research Ethics 7(2):3-19.
Anderson EE, Kraus EM. (2011) Re-examining Empirical Data on Conflicts of Interest Through the Lens of Personal Narratives. Narrative Inquiry in Bioethics 1(2): 91-9.
Hotze T, Shaw K, Anderson EE, Wynia M. (2011) Doctor, Would You Prescribe a Pill to Help Me? A National Survey of Physicians Using Medicine for Human Enhancement. American Journal of Bioethics11(3): 3-13.
Preventing Ethical Disasters in the Practice of Medicine (subcontract with Washington University)
Development of Informed Consent Training Video for Community-Engaged Health Disparities Research Funded by the National Institute of Minority Health and Health Disparities (subcontract with University of Illinois at Chicago)
How Do Underserved Women Think about Breast Cancer Risk? Funded by the National Cancer Institute (subcontract with University of Illinois Chicago)
Environmental Factors Associated with Professional Misconduct in Medical Research and Practice Funded by the Bander Family Foundation (subcontract with Saint Louis University)